Greetings!!
Yesterday the rain came, and the rain went but the humidity stayed. We do have some cooler temperatures than we have had lately but not by much. I am late this morning writing this blog because I figured I had better take advantage of the few degrees cooler and get out and mow the lawns. I mowed both my lawn and the landlord's lawn at the house next door. He lets me use his riding mower and I do both lawns, its a pretty fair deal I would say. I have not done any lawn work in over three weeks due to the high heat and humidity.
I got about half the trimming done with the weed whacker. It is a battery operated one and is not designed to do two lawns on a single charge. So tomorrow morning I will get out and finish the trimming. I have the whacker back on the charger and it will be all set to go in the morning.
With the fibromyalgia even the riding mower will cause my muscles to cramp and spasm. So I always feel accomplished when I get a job like this done. I did not let the pain beat me today and that is such a good feeling. Those of you who live with fibromyalgia will understand how I feel. Being able to do some of the simplest tasks that most people take for granted is a sense of accomplishment and a great triumph for those with fibromyalgia.
When you have fibromyalgia even a gentle breeze can be painful. Feeling clothes touching your skin can make you want to cry. Yet you never want to give into the pain. You push yourself until you have no choice but to give in and rest for a while. It is a constant battle of your will power each and every day. People who do not suffer from this horrible disease cannot even imagine what you go through never mind understand it.
My church family are huggers, they love to hug. The pain of being hugged is excruciating for me, yet I never tell them no or to stop. Why? Because we all need to be hugged and feel loved. And I also don't want to make any one feel bad because they were trying to show me love. Our Heavenly Father commands us to love one another. Hugging is and expression of love. So I hug everyone back who hugs me. Then when I come home after services, I have to give in for a while and rest, take a muscle relaxer and or pain killer and just recover. Will I once again hug everyone next Sunday? Yes I will because I am both giving and receiving love. And love can conquer anything!!
I take one day at a time with my fibromyalgia and I do what I can and try not to worry about what I can not do. Yes, sometimes I push too hard and wind up paying for it with worse pain, muscle spasms and cramps, but then the good that is accomplished is well worth the pain and cramps. I know God is always with me and I can do all things through Christ who strengthens me, sometimes I just have to do it a little slower. :-)
Until next time,,,,,,,Blessings!!
Showing posts with label Fibromyalgia. Show all posts
Showing posts with label Fibromyalgia. Show all posts
Monday, July 25, 2011
Tuesday, May 24, 2011
Illinois Medicaid and fibromyalgia,,,,,
Greetings!!
Recently I was told that Illinois Medicaid in their so call infinite wisdom has decided to stop paying for the prescription Lyrica used to treat fibromyalgia. In my case I am not on medicaid as they decided to stop allowing any new fibromyalgia patients to get medicaid as it was "too expensive an illness for them to pay for." However those that were on medicaid prior to this decision were allowed to stay on it. Now it seems you can be on medicaid with fibromyalgia but we are not going to pay for your medicine!
I personally can not take Lyrica. It stops my metabolism and I have horrible weight gain. In just a few months I had more than doubled my weight. That is the unusual case but it does happen. But I am concerned for those who can take it and now the state wants to stop paying for it. Lyrica is not a cheap medication. If one is on medicaid they already have low finances or they would not be able to get it, along with the fact they are disabled and can not work.
So, in this state's infinite wisdom they are going to take away their only chance of living a life with less pain. Perhaps one that would help them eventually be able to work again. How smart is that? I wish some of these folks in the government would have to live with the pain of fibromyalgia for just one week without any medications. Perhaps that would change their minds. But of course that won't happen. I realize this state has huge financial problems but they want to cut all the wrong programs. And they want to spend money in all the wrong places.
Today I happen to have a doctor's appointment to try to find some sort of pain medication that will help me to just be able to continue to put one foot in front of the other. But it has to be a medication I can afford because I have no income and have not been able to work in 11 years. I have no medicaid or financial assistance. This is one of the reasons I am trying to make some money making and selling ceramics. Working for myself is my only hope of making a living. I can pace myself and when my pain is too high to do anything I can lay down. Try telling an employer, "sorry, I can't do the work you want me to right now, I am in too much pain". That won't last long before you are handed your walking papers. Most won't even higher you in the first place if they know you have fibromyalgia. Believe me, I know, been there, done that, could write a book about it.
Our state also wants to cut funding for mental health. That means many people will not get the help they need, will have no chance of getting back on their feet and will more than likely get worse. And they wonder why people go postal!! The "haves" have more and the "have nots",,,, well they have even less. Good going government, and I do mean every level of government from local, to state, right on up the federal ladder. Perhaps its time for us "have nots" to start taking a bit of what you have!!
Until next time,,,,,,,,,Blessings!
Recently I was told that Illinois Medicaid in their so call infinite wisdom has decided to stop paying for the prescription Lyrica used to treat fibromyalgia. In my case I am not on medicaid as they decided to stop allowing any new fibromyalgia patients to get medicaid as it was "too expensive an illness for them to pay for." However those that were on medicaid prior to this decision were allowed to stay on it. Now it seems you can be on medicaid with fibromyalgia but we are not going to pay for your medicine!
I personally can not take Lyrica. It stops my metabolism and I have horrible weight gain. In just a few months I had more than doubled my weight. That is the unusual case but it does happen. But I am concerned for those who can take it and now the state wants to stop paying for it. Lyrica is not a cheap medication. If one is on medicaid they already have low finances or they would not be able to get it, along with the fact they are disabled and can not work.
So, in this state's infinite wisdom they are going to take away their only chance of living a life with less pain. Perhaps one that would help them eventually be able to work again. How smart is that? I wish some of these folks in the government would have to live with the pain of fibromyalgia for just one week without any medications. Perhaps that would change their minds. But of course that won't happen. I realize this state has huge financial problems but they want to cut all the wrong programs. And they want to spend money in all the wrong places.
Today I happen to have a doctor's appointment to try to find some sort of pain medication that will help me to just be able to continue to put one foot in front of the other. But it has to be a medication I can afford because I have no income and have not been able to work in 11 years. I have no medicaid or financial assistance. This is one of the reasons I am trying to make some money making and selling ceramics. Working for myself is my only hope of making a living. I can pace myself and when my pain is too high to do anything I can lay down. Try telling an employer, "sorry, I can't do the work you want me to right now, I am in too much pain". That won't last long before you are handed your walking papers. Most won't even higher you in the first place if they know you have fibromyalgia. Believe me, I know, been there, done that, could write a book about it.
Our state also wants to cut funding for mental health. That means many people will not get the help they need, will have no chance of getting back on their feet and will more than likely get worse. And they wonder why people go postal!! The "haves" have more and the "have nots",,,, well they have even less. Good going government, and I do mean every level of government from local, to state, right on up the federal ladder. Perhaps its time for us "have nots" to start taking a bit of what you have!!
Until next time,,,,,,,,,Blessings!
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